Stephanie Fradette
Senior Vice President, Head of Neuromuscular Development, Biogen
Vinciane Quoidbach
Research Project Manager, European Brain Council
Ioanna Andreou
Health Services Officer, Ministry of Health (on behalf of the Minister of Health)
Carmen Laplaza Santos
Head of Unit, Health Innovations & Ecosystems DG Research & Innovation, European Commission
Leonidas Phylactou
Chief Executive Officer & Medical Director, The Cyprus Institute of Neurology & Genetics
Michael Komodromos
President of the Board of Directors, The Cyprus Institute of Neurology & Genetics
Olivér Várhelyi
EC Health, Animal Welfare Commissioner
Nicodemos Damianou
Deputy Minister of Research, Innovation and Digital Policy, Republic of Cyprus (on behalf of the President of the Republic)
Séamus Boland
President, European Economic and Social Committee
Stella Kyriakides
Former Commissioner for Health and Food Safety, European Commission
Milena Angelova
Member, European Economic and Social Committee, Raporteur of the opinion
Francois Lamy
Vice president, AFM-Téléthon
Virginie Hivert
Acting CEO and Head of Therapies and Access at EURORDIS
Menelaos Pipis
Senior Neurologist, Head of the Neuropathology Department, The Cyprus Institute of Neurology & Genetics
Donata Meroni
Head of Unit, ‘Health Monitoring and Cooperation, Health Networks, European Commission
Holm Graessner
Lancet Commissioner, Centre for Rare Diseases, University Hospital Tübingen, Germany and Coordinator of ERN-RND
Daria Julkowska
Scientific Coordinator, European Rare Diseases Research Alliance (ERDERA)
Violetta Anastasiadou
Chair, Cyprus National Committee, Rare Diseases
Carsten W. Lederer
Senior Scientist, Head, Blood Disorders Genetics and Thalassaemia Department,The Cyprus Institute of Neurology & Genetics
Nicolas Nicolaides
Pediatrician-Pediatric Endocrinologist, Assistant Professor in Pediatrics, Medical School, University of Cyprus
Karin Knobe
Senior Vice President, Global Head of Rare Diseases, Sanofi
Demetris Skourides
Chief Scientist for Research, Innovation and Technology, Republic of Cyprus
Anton Ussi
Coordinator of REMEDI4All
Birute Tumiene
Coordinator for Competence Centres, Vilnius University Hospital Santaros Klinikos
Petros Petrou
Senior Scientist, Head of the Biochemical Genetics Department, The Cyprus Institute of Neurology & Genetics
Hélène Le Borgne
Policy Officer, DG Research and Innovation, European Commission
Andri Papadopoulou
Scientific Officer, Joint Research Centre, European Commission
Giedrė Kvedaravičienė
Director, Lithuanian Population and Rare Diseases Biobank
Luca Sangiorgi
Coordinator, Rizzoli Orthopaedic Institute & Coordinator, ERN-BOND
Allan Fred Byamukama
Executive Director, Founder, Byamukama Sickle Cell Foundation
Anne‑Sophie Lapointe
French representative, ERN Board of Member States
Christine Leopold
Pharmaceutical system and Policy Researcher, Utrecht Center, Pharmaceutical Policy & Regulation / WHO Collaborating Center
Panikos Voskos
President of Muscular Dystrophy Association
Marina Vasiliou
President and Managing Director, Biogen France
Spyros Polyviou
Director, Cyprus Alliance for Rare Disorders
Harald Schmidt
Coordinator of REPO4EU
