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Francois Lamy

Vice president, AFM-Téléthon

François LAMY acting as a vice-president of the AFM-Téléthon.

François Lamy is the father of an 18-year-old boy with Duchenne muscular dystrophy. He has been a board member of AFM-Téléthon (France) since 2012, becoming vice-president in 2017. He is also a board member of the CECS-ISTEM (Stem Cell Research Centre) and chair of the Patient Advisory Board of the EURO-NMD ERN.

 

AFM-Téléthon was founded by families who realised that their only chance of conquering the disease was to join forces. Starting with just a few families, it has become a key player in the development of treatments for rare diseases, supporting 40 clinical trials in more than 30 pathologies.

Dear delegates,

In light of the latest developments and as a precautionary measure, the Cyprus Presidency of the Council of the EU 2026 has decided to postpone this week’s Presidency Conference Advancement of Treatments for Rare Diseases, scheduled to take place in Cyprus 5–6 March 2026.

Further information regarding possible re-arrangement and new dates will be communicated in due course.

We apologise for the inconvenience caused by these adjustments and thank you for your understanding.

Yours sincerely,
The Organizing Committee
Conference “Advancement of Treatments for Rare Diseases”
Cyprus Presidency of the Council of the European Union 2026