Hélène Le Borgne

Policy Officer, DG Research and Innovation, European Commission

Hélène joined in 2010 the European Commission where she worked firstly in the Directorate-General in charge of health policies (DG SANTE), in particular in the team supporting the establishment of the 24 European Reference Networks (ERNs) on rare diseases. She moved to DG Research & Innovation in January 2020, Unit “Health innovations and ecosystems”, to work on rare disease (RD) research, where she supported the implementation of the European Joint Programme on Rare Diseases (EJP RD) and collaborative research projects to improve diagnostics and therapies for RD patients. She helped preparing, and still support, the European Partnership on Rare Diseases, ERDERA.

Dear delegates,

In light of the latest developments and as a precautionary measure, the Cyprus Presidency of the Council of the EU 2026 has decided to postpone this week’s Presidency Conference Advancement of Treatments for Rare Diseases, scheduled to take place in Cyprus 5–6 March 2026.

Further information regarding possible re-arrangement and new dates will be communicated in due course.

We apologise for the inconvenience caused by these adjustments and thank you for your understanding.

Yours sincerely,
The Organizing Committee
Conference “Advancement of Treatments for Rare Diseases”
Cyprus Presidency of the Council of the European Union 2026