Allan Byamukama

Executive Director, Founder, Byamukama Sickle Cell Foundation

Allan Byamukama is the Executive Director  and Founder of the Byamukama Sickle Cell Foundation, where he leads advocacy, education, and support initiatives for individuals and families affected by sickle cell disease. After recently undergoing a successful gene therapy treatment that resulted in healing from sickle cell disease, Allan brings both professional leadership and lived experience to his work. He is deeply committed to improving access to care, advancing awareness, and promoting equity in health outcomes through community-centered and evidence-informed approaches.

Dear delegates,

In light of the latest developments and as a precautionary measure, the Cyprus Presidency of the Council of the EU 2026 has decided to postpone this week’s Presidency Conference Advancement of Treatments for Rare Diseases, scheduled to take place in Cyprus 5–6 March 2026.

Further information regarding possible re-arrangement and new dates will be communicated in due course.

We apologise for the inconvenience caused by these adjustments and thank you for your understanding.

Yours sincerely,
The Organizing Committee
Conference “Advancement of Treatments for Rare Diseases”
Cyprus Presidency of the Council of the European Union 2026