Holm Graessner has graduated in Biomedical Engineering, Cybernetics, Electrical Engineering, German Language and Literature, Philosophy as well as Business Administration. He received his PhD “Summa cum laude” in 2004 and, then, he obtained his MBA degree in 2008.
He has been Managing Director of the Rare Disease Centre, since 2010, at the University and University Hospital Tübingen, Germany. www.zse-tuebingen.de He is Coordinator (Lead PI) of the European Reference Network for Rare Neurological Diseases (ERN-RND, www.ern-rnd.eu). Together with Olaf Riess, he was leading the H2020 Solve-RD project on “Solving the unsolved rare diseases” (www.solve-rd.eu) and also co-leads the Clinical Research Network of European Rare Disease Research Alliance (www.erdera.org) that has started on 1 Sept 2024. He is a founding member of the European 1 Mutation 1 Medicine initiative and member of the Board of Directors of the N-of-1 Collaborative.
In 2020, he has been appointed fellow of the European Academy of Neurology (EAN) and since 2025 he is a Commissioner in the Lancet Commission on Rare Diseases.
In 2023, he received the EURORDIS Black Pearl Award for Leadership and the first Martha and Wilfried Ensinger Award.