Daria Julkowska holds a PhD in molecular biology and completed postdoctoral research in cellular biology at Institut Pasteur (Paris). She also holds an MSc in Research Management (Paris Dauphine) and has extensive training in EU research policy and communication. Active in the rare disease field since 2010, she coordinated the European Joint Programme on Rare Diseases and is currently Scientific Coordinator of ERDERA, a partnership uniting over 180 institutions across 37 countries. She has built large-scale, multi-stakeholder collaborations spanning academia, funders, industry, clinicians, and patients. She chaired a European Commission Expert Group on partnerships and has received major distinctions, including the EURORDIS Black Pearl Award (2020) and the Prix INSERM (2024).
