François LAMY acting as a vice-president of the AFM-Téléthon.
François Lamy is the father of an 18-year-old boy with Duchenne muscular dystrophy. He has been a board member of AFM-Téléthon (France) since 2012, becoming vice-president in 2017. He is also a board member of the CECS-ISTEM (Stem Cell Research Centre) and chair of the Patient Advisory Board of the EURO-NMD ERN.
AFM-Téléthon was founded by families who realised that their only chance of conquering the disease was to join forces. Starting with just a few families, it has become a key player in the development of treatments for rare diseases, supporting 40 clinical trials in more than 30 pathologies.