A committed advocate for individuals living with rare diseases, with a strong focus on Duchenne Muscular Dystrophy, actively supporting patients and families through continuous engagement and organizational leadership. My work includes participation in committees addressing patient concerns, helping improve support mechanisms and ensuring that patient voices are heard. I closely follow scientific and medical developments in the field of rare diseases and take part in seminars, workshops, and international conferences to stay informed and contribute to broader awareness. Through involvement in various Cypriot organizations and representation in international bodies, I work to strengthen collaboration and advance the rights and well‑being of patients.
