Valentina Bottarelli

Head of Policy and Public Affairs, EURORDIS - Rare Diseases Europe

Valentina Bottarelli joined EURORDIS in 2007 as European Public Affairs Senior Advisor.

Valentina provides policy analysis and strategic advice on EU policies as well as funding opportunities from EU public institutions.

She is also in charge of coordinating, on behalf of EURORDIS, activities aimed at fostering the development of National Plans on Rare Diseases in EU countries within the framework of the EUROPLAN project.

Valentina has extensive experience in the area of EU policies and programmes as well as managing European-funded projects, she has worked as a consultant in public affairs and communications. She has also worked at the European Commission, Directorate External Affairs.

Valentina holds a Master of Arts in European Political and Administrative Studies from the College of Europe in Bruges.

An Italian national, she speaks Italian, French, English and Spanish.

Dear delegates,

In light of the latest developments and as a precautionary measure, the Cyprus Presidency of the Council of the EU 2026 has decided to postpone this week’s Presidency Conference Advancement of Treatments for Rare Diseases, scheduled to take place in Cyprus 5–6 March 2026.

Further information regarding possible re-arrangement and new dates will be communicated in due course.

We apologise for the inconvenience caused by these adjustments and thank you for your understanding.

Yours sincerely,
The Organizing Committee
Conference “Advancement of Treatments for Rare Diseases”
Cyprus Presidency of the Council of the European Union 2026